Common Questions Parents Have:
How do you prepare for the moment when an infant is diagnosed with Down syndrome in your hospital?
- What is your procedure?
- Who should be present when the diagnosis is given?
- What support services are available to the new family?
- Can you give them hope for their child and their family?
- What resources are available to your hospital personnel and the new parents?
- When do you inform the new parents that their child has Down syndrome?
- What is the role of the physician, the nurse, of the social worker, the volunteer?
- What are the social issues that will concern the parents?
“The presentation was informative, insightful and tremendously helpful to our Residents. We learned about things that cannot be gleaned from textbooks alone — things that are crucial to our training and to becoming excellent pediatricians in general. BRAVO!!”
~ Jill Mazurek, M.D.
Chief Pediatric Resident
Children's Memorial Hospital, Chicago, IL
NADS Hospital In-service Program offers answers
The news that your child has Down syndrome is never easy to accept, but we know from experience that parents can accept their child and the reality of the diagnosis if they are:
- Given accurate information on their child’s condition
- Offered a glimmer of hope from the hospital staff
- Referred to a Parent Support Group
When a child is born with Down syndrome, the new parents are frequently informed of their child’s condition shortly after the birth. The news can be devastating. It is a time of major crisis for many parents and also a very difficult situation for medical personnel. The problems seem overwhelming and the new parents need sensitive care and support during this initial period.
The purpose of our Hospital In-service Program is to provide medical personnel with up-to-date information on Down syndrome. NADS also provides information on resources available to medical personnel and to parents.
Our In-service programs have been presented in most Chicago area hospitals. We have addressed:
- Social Workers
- Other medical personnel who interact with new parents
As part of this In-service, we present our very practical and award-winning audio-visual program, You Don't Outgrow Down Sydnrome, Counseling Parents.